Sbp. Im a 29yo CrossFit addicted man who just found out I have BAV while applying for the defence force here in Australia. This award-winning website has helped over 10 million people fight heart valve disease. Thank you for this blog! I feel as though Im recovering well and, having no other conditions or comorbidities, rapidly. Advice here will be based on opinion rather than accumulated evidence in large numbers of children with BAV. Aortic stenosis, the narrowing of the aortic valve. The rest of the aorta is normal (visualized to just above the bifurcation in the abdomen). Thanks for sharing the article about the PEARS technique. Another possibility that you havent mentioned deserves some discussion with your sons doctor(s) or surgeon. I see Im not alone. The only prudent course is to have periodic follow-up imaging to keep track of size/growth. My name became public 25 years ago this week. Thats probably what the doctors are watching for. There were some procedural differences between the bicuspid and tricuspid groups. http://www.energystretch.com Im a 57 year old male who had aorta repair and porcine valve surgery 3 years ago. Guidelines specifically for athletes come from the Proceedings of the 36th Bethesda Conference in 2005. Best Valentine's Day Restaurant Specials 2023. He was forced to stop playing football at 11. I am followed every 2 years. Very helpful. This year (her junior year) her Cardio doc is saying that she cant in good conscious clear her for basketball (the sport my daughter LOVES). He is on meds to slow it down. Aortic stenosis will limit athletic performance at the top end. The doctors tell me I will be able to run again at a level near to what Im accustomed to (50-60 miles per week) but are reluctant at this point to specifically tell me the limitations and restrictions Im to endure. An article at Endurance Corner about Normann Stadler, A blog post about elite triathletes and heart problems, Aortic stenosis and bicuspid aortic valve (BAV), http://www.athletesheart.org/wp-content/uploads/2013/12/Classification-of-Sports-300217.png, https://academic.oup.com/ejcts/article/50/3/400/2197426, If there is enlargement of the beginning portion of the aorta to greater than 4.0 cm, the individual should have a. Contemporary reports suggest that life expectancy with BAV is no different from the general population. Im not a nurse or anyone who can help in any real way, she told PEOPLE, fighting back tears. The various artificial valves are a little bit less efficient that the valve were born with. "I feel fantastic and have already been walking the streets of Cleveland enjoying your amazing statues. I will do whatever I can to make sure my mom is comfortable and has whatever she needs, she said. Most probably not pericarditis cause I had it once so I know that pain type, but again, maybe its some other type. Although we still dont have very long term results tracked (15+ years), in the short term the results seem to be much superior to regular bentall de bono option (and its variations). If reoperation is needed in your case, this would be something to discuss. It is very frustrating as my doctor would prefer to see me live the rest of my life with restrctions and have the aneurysm stabilized rather than take a chance on surgery and possibly returning to my normal lifestyle. Specifically, Im wondering about inversions like forearm stand, head stand, and hand stand. I suspect it had been leaking for a long time, as I felt no different; however, my recovery from long runs took longer than in the past (old age?). I read most of the posts above and I didnt find people describing the decrease in performance due to the BAV. I realize that appointment availability for medical specialistsin your case, the pediatric cardiologistcan be tight. What he did say is there are no signs of stenosis, and my heart looks very strong. Like I said, peoples experiences are all different. With so many similar stories, do you know why there is not more statistical data or studies done with regards to sports and BAV and changes in aortic diameter? They all cause a small bit of obstruction to blood flow as it leaves the heart. Ordinarily, race walking is considered to be in the same category of activity as long-distance running. Aortic regurgitation (also called aortic insufficiency), which is a leaky valve. Apologies for my slow reply. Im wondering if you can advise me. I take bisoprolol (low dose) and my pressure is currently normal . I cant imagine life without activity, but Im not fool to risk my life, not any more anyway :). "I am lucky to be here.". Editorial Review: Andrea Cohen, Editorial Director, Baldwin Publishing, Inc. Anyway, his aorta was growing at a rate of 2 mm per year (he was growing faster:).and they put him on 100 mg Losartan. With aortic dissection, the aorta can develop a tear on its inside wall, leading to unraveling of its layers, and even rupture. Most people require treatment once symptoms develop. Ten years ago (2006), doctors said that there was a worsening of the BAV but still no need to have Aortic replacement. Im 33 and I do jiu-jitsu. Bicuspid aortic valve with Marfan and other HTAD when the ascending aorta is dilated >45 mm. 1) What kind of sports are recommend to me according to my situation? Im not sure how those two problems would be related. The risk of BAV in children of parents with BAV is probably about 10%. Only restrictions are no weights greater than 100 pounds or heavy contact sports. My cardiologist is not concerned. How much worse does it have to get before it should be replaced? Although the vast majority in each group (97%) underwent TAVI via the transfemoral approach, bicuspid patients were less likely to receive conscious sedation (57% vs 62%) and more likely to be treated with the largest 29-mm valve size . To continue to live this amazing life so full of challenges and friends, including so many of you in the audience, I have chosen to replace the valve with a new one. Rest pulse (70 bpm|50 bpm) Best for athletes like you to have a discussion with their doctor(s) and settle on a defined, mutually acceptable course of action about which sports activities are safe. I played competitive amateur football (soccer) on Saturday and Sunday from age 16. Want to get a head start on your Oscar predictions? We dont have a crystal ball, though. I wouldnt hesitate to register your concern with your sons doctor about waiting a few weeks. I have been doing as much research as possible on what are the advantages/disadvantages of each replacement. His doctor did not restrict him, but suggested that it may be time to give up the high-level play due to its high intensity training aspect (based on the Also twice a week I try to do 40-minute workouts like planks, pushups and so on (with my bodyweight). There can be issues with aches and pains even months after operation that still relate to healing. Bicuspid aortic valve is a type of abnormality of the aortic valve. In late March, Schwarzenegger was heavily involved in a chess tournament with his donkey Lulu. That is except for the last two months hes had several illnesses ( influenza, bronchitis, URI). Im 33 from UK and have known about my BAV since I was around 18. Aaron Boone (@AaronBoone), famous baseball player suffered from Bicuspid Aortic Valve. A lot of people have it, she told Access Hollywood in 2009. Perhaps that will provide so e reassurance. , Bicuspid Aortic Valve Disease, Acquired Valve Disease. Thank you for taking the time to respond to everyones concern. In general, we recommend no weight lifting in patients with BAV if the aortic diameter is greater than 4.0 cm. To me, cardiologists are not sports people and air on being absolutely over cautious. I guess my marathon training is officially over, but i hope that i still keep doing some sport and i dont mean bowling, no offense for who practice it ;). The increased stroke volume and cardiac output may cause . They seem very busy and its taken almost a year to get to this stage. My personal approach to endurance athletes in this situation would be to offer operation if the patient wanted to continue to participate in endurance sports (after operation) and was willing to assume the risks of operation. Thank you for what you do and for your responsiveness. ( I was much worse though). PS: I noticed that the option Notify me of follow-up comments by email doesnt seem to work. Is operation needed? Hi. Tachcardaia beetwen echo due that doctor couldent see clearly. My primary question relates to sports. She said not until it gets to 5cm. They can occur separately or together. One doctor to told me just to control it and train as I like but the other one said that with those hearts parameters I will have only 1-2% to have operation in the future but if I will continue to do triathlon for sure I will have to have one. He is very athletic. Maybe a genewho knows. Substitute valves. PS I am really interested to know if HIIT is too intense a system of exercise for people with BAV. There are certainly individuals with BAV who never have trouble down the line. Chris Pratt to Marry into the Kennedy Family. Hello dear doctor. Shes quite the athlete. Perhaps the best course of action might be to start off very conservative with exercise, as you are doing, with periodic assessment of the aortic valve and aorta with echo and CT. You might then gradually increase the activity and monitor for any bad signs with the periodic echos and CTs. One young man's complications from a bicuspid aortic valve were life-threatening, but perseverance and expert care helped him make it through. I am a competitive cyclist, neither the Cardio or my Doctor said I should not be racing bikes anymore, does that sound reasonable to you, my doc did say to monitor the aortic root size yearly. If so, how quickly? In March 2018 he underwent emergency surgery to have this replacement valve replaced. I know what theyre saying and after that I know that I have mixed feelings because I feel depressed about not being active like I used to be, but then I feel selfish as I am not being grateful. Aortic Stenosis Bicuspid aortic valve (BAV) is the most frequent congenital cardiac defect, and affects 0.5-2% of live births. I feel like 95% of other people my doc sees are just happy to get back to their normal life which doesnt include pushing their bodies to extreme limits. Compared to our own native valve, all of the available prosthetic substitutes have a small degree of aortic stenosis built in, unfortunately. A 2nd opinion might help by bringing another set of eyes and ears to your problem. We are trying to work out a way for her to continue to play. My cardiologist (whom I trust) said to keep working out like I always have (good news for me). Dear Doctor, Last week I visited a doctor and here are the changes for the last year (before|after): Your site has been helpful in provided a sense of peacebut an extra insight would be super encouraging. I otherwise feel very healthy, other than (I think) normal slowing down that comes with age. Alternatively, bicuspid aortic valve symptoms can appear during the first twenty years of life. Yes, there are many athlete patients whove had operation for BAV/aortic replacement and returned to a variety of sports. Its probably not possible to have too much information as you think about your situation. ), Your email address will not be published. Thank you so much. I am a 60 yo female who has been active my whole life. I was just curious if there any way to know if my valve is affecting my times at all? He isnt interested in anything else. Health eCooking is a registered trademark of Baldwin Publishing, Inc. Cook eKitchen is a designated trademark of Baldwin Publishing, Inc. Any duplication or distribution of the information contained herein without the express approval of Baldwin Publishing, Inc. is strictly prohibited. As Schwarzenegger previously had two cardiac procedures, it is possible that Arnold may have received aTAVR using a Valve-in-Valve approach to replace his failing aortic tissue valve that was implanted in 1997. Consult your doctor to see if there are any restrictions that would be specific to your case. If youre uncertain about any advice youve received about exercise, you might try to seek a second opinion that may provide some extra confidence about exercise. I am 18 years old . It was reported on April 5 that the 75-year-old Jagger underwent successful transcatheter aortic valve replacement (TAVR) at an undisclosed hospital in New . Thank you for the follow-up! 6 weeks later Im still experiencing symptoms that (in the back of my mind) have me thinking about the BV issue. The exact cause of aortic enlargement in patients is not known. The reason I ask is my Cardiologist said it looked fine in the echo imaging, but (and correct me if Im wrong please) I got the impression from what you said in this article that a CT or MRI is necessary for aortic diameter measurement. I would very much appreciate your opinion weather he can continue his regular football training or should stop it. I had a cardio version to correct the AFIB. I wouldnt put you in the position of giving me your opinion in a public in forum but just let me know if based on the following, you think Im crazy or not. These operations can sometimes enjoy the benefits of each of the operations you mentioned.and avoid done of the down sides. No operation to replace/repair the aortic valve and yo replace the ascending aorta is minimally invasive. Thats just a marketing gimmick. In your case, though, the infection might well influence the healing process. I agree that your doctor(s) are in the best position to offer advice regarding safe exercise based upon your particular circumstances. Got rheumatic heart disease in my childhood and now have fibrosis of the aortic valve with regurgitation (1-2), mitral valve prolapse with regurgitation (1-2) and tricuspid valve regurgitation (1). How are you? But Bob, you confirm that it does for you; and unfortunately I see same for me although 25 years younger. Regards The doctor looked at the results and told me to limit physical activity (running), because it can lead to heart failure in future. (Have you heard of the studies by Dr. Only two cusps, commissures and sinuses are seen in the less common "pure" bicuspid aortic valve subtype. Does lifting weights up to 100 pounds and being cleared for push-ups, pull-ups, all cardio, etc., sound reasonable? Then, a Dacron fabric tube can be used to reconstruct the aorta, in a so-called valve-sparing aortic root replacement. And what would moderate weight lifting be defined as? These leaflets open and close to regulate blood flow from the heart into the aorta, and prevent blood from flowing back into the heart. The echo in Jan asc aorta Diam 4.2 cm z-score 6.4. In addition, the Left ventrical has slowly increased over this same time period from 5.87 to 6.6 cm. 1. So it is very possible to continue athletic activities after surgery. A bicuspid aortic valve is a congenital condition, meaning that people are born with two rather than the normal three cusps on their aortic valve. Many of us are not familiar with the many types and facets of the martial arts. As a result, the valve doesn't function perfectly. I had multiple re-hospitalizations but seemed to recover. After the first month, patients are generally allowed to return gradually to all of their previous activities. If you havent yet seen a surgeon, perhaps a visit would all wan opportunity to talk about these issues, even if operation is not yet needed. The congenital bicuspid aortic valve (BAV) condition is a valvulo-aortopathy with substantial heterogeneity in its clinical expressions, associated disorders, complications, and prognosis. The data regarding the progression of disease in athlete patients with BAVare limited. I know that heart surgery can be scary.but I also know that for the vast majority of patients with these conditions, surgery goes well and the outcomes are good. Congenital heart issues affect approximately 40,000 people born each year in the U.S. and are one of the most common types of birth defects. Moderately dilated aortic root (max 46mm), mild ascending aortic dilatation. Ascending aorta is normal and so the rest. Mild degrees of aortic regurgitation are usually well-tolerated and do not produce symptoms. His aorta is lightly enlarged. Many congenital heart defects cause few or no symptoms. ", Braxton is a survivor of pericarditis, an inflammation of the sac surrounding the heart. Kim Kardashian Doja Cat Iggy Azalea Anya Taylor-Joy Jamie Lee Curtis Natalie Portman Henry Cavill Millie Bobby Brown Tom Hiddleston Keanu Reeves. Will I need surgery? To list down the names of celebrities including entertainers, musicians, politicians, TV personalities, sports figures, etc. Hi Dr Creswell, The problem is I have developed an aneurysm on my ascending aorta of 44mm. The Ross procedure borrows your sons pulmonary valve and uses it to replace his aortic valve and aorta. The important considerations in athletes with BAV are the degree of regurgitation of the valve and the degree of enlargement of the aorta. My average weekly training plan includes 50k of running (5 days) with 80% done on pulse below 154-152 and only 20% done at pulse about 175-179 bpm. I found myself in emergency surgery 12 months ago with 50% leakage, an enlarged heart and an ejection fraction of 30. I have read that strength training is beneficial for heart health. Thank you so much for all of this insightful information. As a consequence, these individuals develop earlier calcification of the valve leaflets, leading to narrowing, or stenosis. Many thanks again for answering this. Jeff. However my Sinus of valsalva is dilated between 45-47mm (depending on the machine used). Barb. Im 31 and 1 years ago i found im BAV with modrate AI. It usually consists of three flaps of tissue what are called valve cusps. I cant thank you enough for your responses to all the above questions. The first pic showed the action and comedy legend in a supine position with a thumbs-up, while the next three featured a lovely autumn walk, taking in the sights. However, this is not always the case. Others won't have symptoms until adulthood, if ever. Use of this site constitutes acceptance of our User Agreement and Privacy Policy and Cookie Statement and Your California Privacy Rights. If I ever need surgery to replace my root , I understand that there is an element of complexity for such surgery, but after surgery, is life expectancy for individuals assumed to be shortened at all ? As I restart my resistance (weight training) program what should be my upper limit weights? Regarding activity restrictions, you would do best to rely on the advice of your sons doctor(s) who will be in the best position to know the relevant specifics. Finally, many patients are able to return to their sports after successful operation. Its now 8 months after surgery and Im pretty much back in my every day life, was even granted to attend my pilot medical tests which are due in 2 weeks. The HAART 200 is an innovative device that helps in the repair of BAV, allowing patients to avoid aortic valve replacement. There are certainly athletes whove returned to their sports after valve (and aorta) repair/replacement. Bobbie. We expect the current generation tissue valve to last at least 12-15 years before problems. The truth is that there is not much scientific information about what happens to such athletes if they do return to endurance sports. At the USC Cardiovascular Thoracic Institute, we are dedicated to improving the statistics concerning cardiovascular and thoracic disease such as those once faced by the governor, said Starnes, who also serves as executive director of the Institute. For me, its about gender equality. Ever since undergoing open heart surgery in 2010 for her surprise diagnosis of heart disease, Jones has worked as a national ambassador for the American . I applaud your efforts to search out information to help you decide on a course of action. Consensus guidelines suggest that athletes with mild aortic regurgitation and no other heart problems can participate fully in their sports. In addition to being patients, there are many celebrities who, like you, parent a child with CHD as well. Unfortunatly that`s pretty much all the advice i`ve been given so far, so little out there on what i can actively do and what i can`t. They all cause a small bit of obstruction to blood flow as it leaves the heart. Im not aware of studies explicitly about athletes after Ross procedure for BAV. Hes a 30-year-old 8th grade science teacher, a cyclist and outdoorsman, who is chronicling his story with BAVfrom diagnosis, to evaluation, to preparations for upcoming valve replacement surgery. For the last 7-8 years I didnt do too much sport (kids, family). Functionally bicuspid aortic valve (type 1). Could the changes in my LV be the result of the physiological, not the pathological change? Dear Dr. Creswell, They all underwent aortic valve replacement. These are the data I got in my last MTB race. There is recent interest and experience with aortic valve repairinstead of replacementfor patients with BAV. New guidelines from the American College of Cardiology (ACC) were published just this week. The aortic valve is between the left lower heart chamber and the body's main artery, called the aorta. diagnosed wid BAV AND AS WITH AR Any words you have for us would be greatly appreciated. The doctor said it wasnt serious, but that I should keep watch on it every year. And any valve substitute (with valve replacement) is clearly not as efficienteven if the substitute is better than a diseased valve. I just want to know what things I will see change so that I dont look past the change in my valve and miss my window to get the valve replaced. Doctors at the Frankel Cardiovascular Center's Comprehensive Aortic Program have . Apparently I also have a mildly enlarged IVC as well as mildly enlarged left and right atria. I have normal aortic size, mildly dilated aortic sinus (39 cm), and trace aortic regurg. For patients with bioprosthetic valves after heart valve surgery, the valve itself is not usually affected by weight-lifting activities. I look forward to hearing from you. I had AVR exactly 1 year ago to the date. which seems to suggest that he has returned successfully to the sport. A bicuspid aortic valve only has two of these leaflets. BAV is present at birth (congenital). Use or viewing of any Baldwin Publishing, Inc. article signifies your understanding and agreement to the disclaimer and acceptance of these terms of use. I now take diltiazem daily. A different set of. These Famous People Survived Congenital Heart IssuesYou Can, Too, On-Site CLIA Certified Laboratory Services, Click here for COVID-19 & Vaccine Information, Actor, body builder and former California Governor, After winning three Super Bowls with the New England Patriots, linebacker. I have an OnX mechanical valve. BAV is the most prevalent congenital heart defect, but can go undetected for years - even into adulthood. It's the most common type of congenital heart disease (heart defect that's present at birth) and often goes unnoticed until later in life. I dont believe this has been well studied. I have severe aortic stenosis with no signs or symptoms. Common symptoms include chest pain, shortness of breath, dizziness and fainting. Ive not found any programs for evaluating repaired athletes unless something exist with a physiologist research lab. Bicuspid aortic valve. I am considered elite in my age division. Glad to hear that youve found a surgeon and settled on a plan. Its weird because sometimes when Im resting I can feel a little weird fluttering.. These differences of opinion may be legitimate. His cardiologist said, i am sure he can play a full game with new issues but I have to go with new guidelines and indirectly left it up to me to make the decision which moved him to mild /moderate and put right at the Borderline. Lastly, Id say that BAV alonewithout leakage or narrowing of the aortic valve, and without enlargement of the nearby aortawould not preclude sports activities of any sort. I was diagnosed with BAV about four years ago now by fluke whilst looking into my high blood pressure (I was only 24 at the time so I underwent a lot of testing due to my age and HBP the conclusion was it is hereditary, with many members of my family with HBP). I would really like to know if I can (or shouldnt) push myself as hard as I used to. While I no longer due very strenuous activities, I still play softball, golf, kayak, ski, and do play hockey every now and again. Bicuspid aortic value ppg 24 mmhg lessons) Search for heart hospitals that specialize in heart valve treatment. Normal pericardium, no pericardia effusion Thanks for sharing your sons story. From your reading, or even just here at the blog, youll know that its not an unusual story. At 4.0 cm, its important to be thoughtful about activities. When Ive had patients in your situation, Ive usually recommended getting the screening when its CONVENIENT. My aortic root is 4.06 cms. I see in this blog that Dr. C noted: Compared to our own native valve, all of the available prosthetic substitutes have a small degree of aortic stenosis built in, unfortunately. A bicuspid aortic valve is a congenital condition, meaning that people are born with two rather than the normal three cusps on their aortic valve. I have also had a stress test, which showed no issues at all.